{"id":11479,"date":"2022-07-05T15:24:02","date_gmt":"2022-07-05T15:24:02","guid":{"rendered":"https:\/\/ohmatdyt.com.ua\/?p=11479"},"modified":"2022-07-05T15:24:02","modified_gmt":"2022-07-05T15:24:02","slug":"do-uvagi-orfannih-patsiyentiv","status":"publish","type":"post","link":"https:\/\/ohmatdyt-2026.fotobashnya.com.ua\/?p=11479&lang=uk","title":{"rendered":"\u0414\u043e \u0443\u0432\u0430\u0433\u0438 \u043e\u0440\u0444\u0430\u043d\u043d\u0438\u0445 \u043f\u0430\u0446\u0456\u0454\u043d\u0442\u0456\u0432"},"content":{"rendered":"\n\t\t\t\t\n<figure class=\"wp-block-image\"><img decoding=\"async\" src=\"https:\/\/ohmatdyt-2026.fotobashnya.com.ua\/wp-content\/uploads\/2022\/07\/292362690_3109036052740444_6599893872511040169_n-700x368.jpg\" alt=\"\" class=\"wp-image-11480\"\/><\/figure>\n\n\n\n<p class=\"has-medium-font-size\"><strong>\u041a\u043e\u043c\u0430\u043d\u0434\u0430 \u0426\u0435\u043d\u0442\u0440\u0443 \u043e\u0440\u0444\u0430\u043d\u043d\u0438\u0445 \u0437\u0430\u0445\u0432\u043e\u0440\u044e\u0432\u0430\u043d\u044c \u0442\u0430 \u0433\u0435\u043d\u043d\u043e\u0457 \u0442\u0435\u0440\u0430\u043f\u0456\u0457 \u041d\u0414\u0421\u041b \u00ab\u041e\u0445\u043c\u0430\u0442\u0434\u0438\u0442\u00bb \u0432\u0456\u0434 \u043f\u043e\u0447\u0430\u0442\u043a\u0443 \u043f\u043e\u0432\u043d\u043e\u043c\u0430\u0441\u0448\u0442\u0430\u0431\u043d\u043e\u0433\u043e \u0432\u0442\u043e\u0440\u0433\u043d\u0435\u043d\u043d\u044f \u043f\u0440\u0430\u0446\u044e\u0454 \u043d\u0430\u0434 \u0431\u0435\u0437\u043f\u0435\u0440\u0435\u0431\u0456\u0439\u043d\u0438\u043c \u043d\u0430\u0434\u0430\u043d\u043d\u044f\u043c \u0434\u043e\u043f\u043e\u043c\u043e\u0433\u0438 \u0443\u043a\u0440\u0430\u0457\u043d\u0441\u044c\u043a\u0438\u043c \u043e\u0440\u0444\u0430\u043d\u043d\u0438\u043c \u043f\u0430\u0446\u0456\u0454\u043d\u0442\u0430\u043c.<\/strong><\/p>\n\n\n\n<p>\u0411\u0430\u0433\u0430\u0442\u043e \u043f\u0430\u0446\u0456\u0454\u043d\u0442\u0456\u0432 \u0435\u0432\u0430\u043a\u0443\u044e\u0432\u0430\u043b\u0438\u0441\u044f \u0437\u0430\u043a\u043e\u0440\u0434\u043e\u043d, \u0442\u043e\u0436 \u043f\u0435\u0440\u0435\u0434 \u043d\u0430\u0448\u0438\u043c\u0438 \u0444\u0430\u0445\u0456\u0432\u0446\u044f\u043c\u0438 \u043f\u043e\u0441\u0442\u0430\u043b\u043e \u0437\u0430\u0432\u0434\u0430\u043d\u043d\u044f \u2014 \u0441\u043a\u043e\u043e\u0440\u0434\u0438\u043d\u0443\u0432\u0430\u0442\u0438 \u0442\u0430 \u0437\u0430\u0431\u0435\u0437\u043f\u0435\u0447\u0438\u0442\u0438 \u044f\u043a\u0456\u0441\u043d\u0443 \u043c\u0435\u0434\u0438\u0447\u043d\u0443 \u0434\u043e\u043f\u043e\u043c\u043e\u0433\u0443 \u043d\u0430\u0448\u0438\u043c \u043f\u0430\u0446\u0456\u0454\u043d\u0442\u0430\u043c, \u044f\u043a\u0456 \u0432\u0438\u0457\u0445\u0430\u043b\u0438 \u0437 \u0423\u043a\u0440\u0430\u0457\u043d\u0438 <\/p>\n\n\n\n<p>\u041a\u043e\u043c\u0430\u043d\u0434\u0430 European Reference Networks \u0437\u0430 \u043f\u0456\u0434\u0442\u0440\u0438\u043c\u043a\u0438 EURORDIS \u0432 \u0406\u0441\u043f\u0430\u043d\u0456\u0457 \u0441\u0442\u0432\u043e\u0440\u0438\u043b\u0430 \u043a\u043e\u043e\u0440\u0434\u0438\u043d\u0430\u0446\u0456\u0439\u043d\u0438\u0439 \u0446\u0435\u043d\u0442\u0440 \u043d\u0430\u0434\u0430\u043d\u043d\u044f \u0441\u043f\u0435\u0446\u0456\u0430\u043b\u0456\u0437\u043e\u0432\u0430\u043d\u043e\u0457 \u043c\u0435\u0434\u0438\u0447\u043d\u043e\u0457 \u0434\u043e\u043f\u043e\u043c\u043e\u0433\u0438 \u043f\u0430\u0446\u0456\u0454\u043d\u0442\u0430\u043c \u0437 \u0440\u0456\u0434\u043a\u0456\u0441\u043d\u0438\u043c\u0438 \u0437\u0430\u0445\u0432\u043e\u0440\u044e\u0432\u0430\u043d\u043d\u044f\u043c\u0438 \u0432 \u0423\u043a\u0440\u0430\u0457\u043d\u0456 \u0430\u0431\u043e \u0437\u0430 \u0457\u0457 \u043c\u0435\u0436\u0430\u043c\u0438. \u0424\u0430\u0445\u0456\u0432\u0446\u0456 \u043d\u0430\u0448\u043e\u0433\u043e \u0426\u0435\u043d\u0442\u0440\u0443 \u043e\u0440\u0444\u0430\u043d\u043d\u0438\u0445 \u0437\u0430\u0445\u0432\u043e\u0440\u044e\u0432\u0430\u043d\u044c \u0442\u0456\u0441\u043d\u043e \u0441\u043f\u0456\u0432\u043f\u0440\u0430\u0446\u044e\u044e\u0442\u044c \u0437 \u0454\u0432\u0440\u043e\u043f\u0435\u0439\u0441\u044c\u043a\u0438\u043c\u0438 \u043a\u043e\u043b\u0435\u0433\u0430\u043c\u0438 \u0442\u0430 \u0432\u0436\u0435 \u0432\u0441\u0442\u0438\u0433\u043b\u0438 \u043f\u0440\u043e\u0432\u0435\u0441\u0442\u0438 \u043f\u0435\u0440\u0448\u0435 \u0440\u043e\u0437\u0448\u0438\u0440\u0435\u043d\u0435 \u0437\u0430\u0441\u0456\u0434\u0430\u043d\u043d\u044f. \u041c\u0438 \u043f\u0440\u043e\u0434\u043e\u0432\u0436\u0443\u0454\u043c\u043e \u043d\u0430\u0434\u0430\u0442\u0438 \u044f\u043a\u0456\u0441\u043d\u0443 \u043f\u0456\u0434\u0442\u0440\u0438\u043c\u043a\u0443 \u0442\u0430 \u0434\u043e\u043f\u043e\u043c\u043e\u0433\u0443 \u043d\u0430\u0448\u0438\u043c \u043f\u0430\u0446\u0456\u0454\u043d\u0442\u0430\u043c, \u0434\u0435 \u0431 \u0432\u043e\u043d\u0438 \u043d\u0435 \u0431\u0443\u043b\u0438 <\/p>\n\n\n\n<p>\u042f\u043a\u0449\u043e \u0432\u0438 \u0454 \u043e\u0440\u0444\u0430\u043d\u043d\u0438\u043c \u043f\u0430\u0446\u0456\u0454\u043d\u0442\u043e\u043c, \u043f\u0435\u0440\u0435\u0431\u0443\u0432\u0430\u0454\u0442\u0435 \u0437\u0430 \u043a\u043e\u0440\u0434\u043e\u043d\u043e\u043c \u0442\u0430 \u043f\u043e\u0442\u0440\u0435\u0431\u0443\u0454\u0442\u0435 \u0434\u043e\u043f\u043e\u043c\u043e\u0433\u0438 \u2014 \u0437\u043d\u0430\u0439\u0442\u0438 \u043f\u043e\u0442\u0440\u0456\u0431\u043d\u0443 \u0456\u043d\u0444\u043e\u0440\u043c\u0430\u0446\u0456\u044e \u0442\u0430 \u0437\u0430\u043b\u0438\u0448\u0438\u0442\u0438 \u0437\u0430\u044f\u0432\u043a\u0443 \u043c\u043e\u0436\u043d\u0430 \u043d\u0430 \u0441\u0430\u0439\u0442\u0430\u0445: <a rel=\"noreferrer noopener\" href=\"https:\/\/l.facebook.com\/l.php?u=https%3A%2F%2Fwww.erncare4ua.com%2Fuk%3Ffbclid%3DIwAR2j1yVEgcy-BRuMrAbnQtckUPfyhVjFj_qZJMrgSpNYo_9N5RJDVIOSYNE&amp;h=AT3fztVbzvatPJeFR4RhDFgqcMBMXu8P8FU4vLe1SHFPf0EfdKkXLRFkQXcFe2fYrPRLLh4QeSFcrYV8RlN0NZHhzLoWltvQECX-pEU1BgswFCHP3aqRlYJ7-NbPAoHuSaFD&amp;__tn__=-UK-R&amp;c[0]=AT0YBODB8vx9PyCQ6KvwkqqAtmPSlVClX3kz5SR58i5quNYGuYtB0OghYppVXSuud4pXG_ILfI5_RrzGFi2VTM-SxiLh1pwB1Sz0fCaUWhnS8yFZ4R8B_JDT71-9U4SeCGD7ZNvGGAacR6M8t_0OOlm20LBWZU5nuFsYkAbz_oUnjiTs_ejaUkBr1QYCb-U9HhbqpLY8Yw\" target=\"_blank\">erncare4ua.com<\/a> \u0442\u0430  <a rel=\"noreferrer noopener\" href=\"https:\/\/l.facebook.com\/l.php?u=https%3A%2F%2Fwww.rarediseaseshub4ua.org%2F%3Ffbclid%3DIwAR1KDTKmvryyPRjQkfoncz_UM0FjHh92tNERSQqxHD89xP_MY03cB3T5C8E&amp;h=AT2cF_vpD9RqG8GJ75ZiIogaIjcZA7Yui9faBvB0A1JTxwghAUZOQT_pddYx_BF0_rImQjZWGzZq_9j8XbhiVeaL72mMdApCm7-RvIeJA04o7Nu0gW_Z5pqDcEt8ThwJMzSQ&amp;__tn__=-UK-R&amp;c[0]=AT0YBODB8vx9PyCQ6KvwkqqAtmPSlVClX3kz5SR58i5quNYGuYtB0OghYppVXSuud4pXG_ILfI5_RrzGFi2VTM-SxiLh1pwB1Sz0fCaUWhnS8yFZ4R8B_JDT71-9U4SeCGD7ZNvGGAacR6M8t_0OOlm20LBWZU5nuFsYkAbz_oUnjiTs_ejaUkBr1QYCb-U9HhbqpLY8Yw\" target=\"_blank\">rarediseaseshub4ua.org<\/a><\/p>\n\t\t","protected":false},"excerpt":{"rendered":"<p>\t\t\t\t\u041a\u043e\u043c\u0430\u043d\u0434\u0430 \u0426\u0435\u043d\u0442\u0440\u0443 \u043e\u0440\u0444\u0430\u043d\u043d\u0438\u0445 \u0437\u0430\u0445\u0432\u043e\u0440\u044e\u0432\u0430\u043d\u044c \u0442\u0430 \u0433\u0435\u043d\u043d\u043e\u0457 \u0442\u0435\u0440\u0430\u043f\u0456\u0457 \u041d\u0414\u0421\u041b \u00ab\u041e\u0445\u043c\u0430\u0442\u0434\u0438\u0442\u00bb \u0432\u0456\u0434 \u043f\u043e\u0447\u0430\u0442\u043a\u0443 \u043f\u043e\u0432\u043d\u043e\u043c\u0430\u0441\u0448\u0442\u0430\u0431\u043d\u043e\u0433\u043e \u0432\u0442\u043e\u0440\u0433\u043d\u0435\u043d\u043d\u044f \u043f\u0440\u0430\u0446\u044e\u0454 \u043d\u0430\u0434 \u0431\u0435\u0437\u043f\u0435\u0440\u0435\u0431\u0456\u0439\u043d\u0438\u043c \u043d\u0430\u0434\u0430\u043d\u043d\u044f\u043c \u0434\u043e\u043f\u043e\u043c\u043e\u0433\u0438 \u0443\u043a\u0440\u0430\u0457\u043d\u0441\u044c\u043a\u0438\u043c \u043e\u0440\u0444\u0430\u043d\u043d\u0438\u043c \u043f\u0430\u0446\u0456\u0454\u043d\u0442\u0430\u043c\t\t<\/p>\n","protected":false},"author":1,"featured_media":11481,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[2],"tags":[],"class_list":["post-11479","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-novini"],"acf":[],"_links":{"self":[{"href":"https:\/\/ohmatdyt-2026.fotobashnya.com.ua\/index.php?rest_route=\/wp\/v2\/posts\/11479","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/ohmatdyt-2026.fotobashnya.com.ua\/index.php?rest_route=\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/ohmatdyt-2026.fotobashnya.com.ua\/index.php?rest_route=\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/ohmatdyt-2026.fotobashnya.com.ua\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/ohmatdyt-2026.fotobashnya.com.ua\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=11479"}],"version-history":[{"count":0,"href":"https:\/\/ohmatdyt-2026.fotobashnya.com.ua\/index.php?rest_route=\/wp\/v2\/posts\/11479\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/ohmatdyt-2026.fotobashnya.com.ua\/index.php?rest_route=\/"}],"wp:attachment":[{"href":"https:\/\/ohmatdyt-2026.fotobashnya.com.ua\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=11479"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/ohmatdyt-2026.fotobashnya.com.ua\/index.php?rest_route=%2Fwp%2Fv2%2Fcategories&post=11479"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/ohmatdyt-2026.fotobashnya.com.ua\/index.php?rest_route=%2Fwp%2Fv2%2Ftags&post=11479"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}